We know having a child with a chronic illness is difficult.
Apart from dealing with the fear and stress that can accompany initial diagnosis, you also have to manage the day-to-day anxieties about your child’s health, medications and hospital appointments, the impacts on siblings and changing dynamics within family units, and the uncertainty about the future. Which is quite a lot to deal with.
So we’ve designed this website to provide clear information about paedriatic rheumatologic conditions, to connect you with latest research, group all the support organisations in one place and to try to make your arduous, though sometimes rewarding, journey a little easier.
If you’d like to share your story online, let us know.
And if you can’t find what you were looking for, let us know and we’ll do our best to fix it.