Carter and Camp Twinkletoes

Carter is almost seven years old and has a common type of JIA, oligoarthritis, in both knees and his wrist. One day when he was four, his parents watched him climb out of a swimming pool and noticed that one knee was the size of a large grapefruit. “Within three weeks his movement and gait had complete…
Read more

Caitlin’s story

Caitlin's story for the Paedriatirc Rheumatology Network. Photo courtesy of Kelly Brito via Unsplash.
My name is Caitlin Holder and I suffer from Systemic Arthritis which impacts my everyday life. School was difficult to manage at times, as it took time to learn what I was capable of. With management and support from the school therapy team, teachers and my head teacher we created a plan which allowed me…
Read more

Our 14-year JIA journey

Jo's story. Photo courtesy of Nadine Shaabana via Unsplash.
Our son was diagnosed at a time when we were just learning about being parents, and suddenly had to learn about a disease affecting our baby boy. We were overwhelmed and under-informed. It hasn’t been an easy journey, but it has been enlightening and surprisingly rewarding at times. Sounds funny when you’re talking about a…
Read more

Josh’s story

Photo of Josh balancing on one arm on a wall overlooking the Grand Canyon. Paedriatric Rheumatology Network.
2017 started for us on a high, everything was falling into place – our swimming pool was due for completion, kids’ sports organised, last minute fundraising for the trip of a lifetime with kids dance studio underway. Then suddenly, Joshua became very ill. Back and forth from our family doctor for nearly four weeks, only…
Read more

Camps for kids with arthritis

At Arthritis NSW, our goal is to help children and young people with arthritis. Arthritis & Osteoporosis NSW runs two annual camps for children affected by juvenile arthritis: Camp Twinkletoes for children under 8 years old and their families, and Camp Footloose for children and young people aged 9 to 18 years…
Read more