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Sofia’s story

Sofia suffers from JIA and is a patient of The Children's Hospital at Westmead.
Generally thought of as an adult disease, it might surprise you to know that 1 in 800 Australian children are affected by juvenile arthritis and other rheumatic diseases. Rachelle said, “we were completely shocked when Sofia was diagnosed, because we’d never heard of arthritis in children. We thought it was a disease that only affected older people.” For children, early diagnosis and treatment is essential to prevent irreversible damage to…
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Ella talks Footloose

When I first heard about Camp Footloose to be honest I was a bit hesitant and didn’t really want to go, and as it turns out, choosing to go was one of the best decisions of my life. I met kids just like me. I didn’t have to explain why I couldn’t do something…
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Get ready for Camp Footloose

Thank you for holding a great camp. I met heaps of great people and had an amazing time. Its time to start thinking about Camp Footloose.  If you are between 9 and 18 year of age, why don’t you consider attending Camp Footloose.   Camp Footloose is an annual event run by Arthritis…
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Carter and Camp Twinkletoes

Carter is almost seven years old and has a common type of JIA, oligoarthritis, in both knees and his wrist. One day when he was four, his parents watched him climb out of a swimming pool and noticed that one knee was the size of a large grapefruit. “Within three weeks his movement and gait had complete…
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Caitlin’s story

Caitlin's story for the Paedriatirc Rheumatology Network. Photo courtesy of Kelly Brito via Unsplash.
My name is Caitlin Holder and I suffer from Systemic Arthritis which impacts my everyday life. School was difficult to manage at times, as it took time to learn what I was capable of. With management and support from the school therapy team, teachers and my head teacher we created a plan which allowed me…
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Our 14-year JIA journey

Jo's story. Photo courtesy of Nadine Shaabana via Unsplash.
Our son was diagnosed at a time when we were just learning about being parents, and suddenly had to learn about a disease affecting our baby boy. We were overwhelmed and under-informed. It hasn’t been an easy journey, but it has been enlightening and surprisingly rewarding at times. Sounds funny when you’re talking about a…
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