Privacy

Your privacy is a top priority for us. When dealing with your personal information we observe our obligations under the Privacy Act 1988 and comply with the Australian Privacy Principles, as well other relevant State legislation. The Act is available at http://www.comlaw.gov.au

When personal information no longer required, we destroy or delete it in a secure manner, according to regulations outlined by Administrative Functions Disposal Authority (AFDA).

Our Privacy Policy sets out how we will collect, use, store, disclose and de-identify your personal information.

We collect:

• contact details (name, address, telephone numbers, email, etc);
• employment history;
• educational qualifications;
• complaint details;
• donation history; and
• credit card and/or bank account details.
• The types of sensitive information we collect include records of communication between us, which may include from time to time, information you provide us or we collect from others. This includes, but is not limited to, the following types of information:
• health information;
• racial or ethnic origin;
• personal financial information;
• personal credit card data; and
• any idiosyncratic or personal formation we obtain from you or others about you.

We collect your information in the following ways:

• face to face contact;
• electronically including through our website and online surveys;
• via social media messages or conversation;
• during phone calls;
• voice or image recordings;
• whilst delivering and administering services at our facilities; and
• from forms, coupons and other correspondence (both in writing and electronically).

The Paedriatric Rheumatology Network (PRN) uses tools provided by third parties, such as Google Analytics, to review website traffic information. Information collected may include the IP address of the device and information about sites that IP address has come from, the pages you visit on our site and the previous site visited. We use this information to maintain, secure and improve your online experience.

You can opt out of Google Analytics data collection by using the Google Analytics Opt-out Browser Add-on .

PRN uses ‘cookies’ for maintaining contact with website users. Cookies are small files compiled when using the PRN website which is stored by the web browser software on your computer. The Privacy Commission provides more information about cookies at http://www.privacy.gov.au/internet/internet_privacy/#2.1.

PRN does not identify users or their browsing activities unless legally requested by a law enforcement agency.

We will only use and disclose your personal information for the purpose(s) for which it was collected, or as otherwise permitted by law. We will not disclose the above information that we collect to affiliates or third parties without your consent. Sometimes, we may be legally required to disclose your information, for example, to government departments where you request a criminal record check.

PRN does not use personal information for any medical-related research purpose. All medical research is conducted under the strict guidelines governed by legislation, and no information we collect from you in regular communications or by online interactions is used in medical research.

We may disclose your personal information to external support services such as volunteers, service providers, agencies and other not-for-profit organisations, like-minded organisations that contract and provide or perform services on our behalf.

We take reasonable steps to ensure that these companies are bound by confidentiality and privacy obligations when handling your personal information. If you don’t want your personal information disclosed to another company, please let us know at the time we collect your information.

Occasionally, we may use overseas facilities or contractors to process or back-up information or to provide other services. As a result, we may disclose your personal information to our overseas facilities or contractors for these purposes. Any disclosure of your personal information overseas does not change our commitment to safeguarding your privacy. We do not otherwise disclose or transfer your personal information overseas.

You can access your information by asking us. Occasionally, we may refuse your request, for example, where granting you access would infringe someone else’s privacy. When you request access, we will ask you to provide some form of identification so that we can ensure that you are the person to whom the information relates. In some cases, we may also ask you to pay a reasonable fee to cover the cost of access.

If you have a question about this privacy policy or want to access your personal information please email us on prn@health.nsw.gov.au, or call us on 0472 868 036.

We aim to respond to you within 28 days of receiving your request. If we’re not able to help with your request, we will let you know in writing.

If you’re concerned about how we have collected or managed your personal information please call us on 0472 868 036. If you wish to raise an issue about your privacy, please email us on prn@health.nsw.gov.au.

If you are still not satisfied, you can make a complaint to the Office of the Australian Information Commissioner.